Purposeful, accountable, and patient-informed: Rethinking measurement practices in health services research

Skye Barbic, PhD, MSc, BSc (OT), BSc
Scientist, CHÉOS
Associate Professor, Department of Occupational Science and Occupational Therapy, UBC

Purposeful, accountable, and patient-informed: Rethinking measurement practices in health services research

Reliable and valid quantification of clinical outcomes is critical for health services research, clinical practice, and policy making. In health services research, there is a call for researchers, clinicians, and decision-makers to use patient-centred outcome data routinely at the point of care to help tailor treatment plans to meet the patient’s goals and needs. Given that many decisions in health are constructed from patients’ narratives, it is critical that the conceptual, empirical, and measurement structure underlying patient-reported outcome measures is robust and patient-centered. This presentation will argue for the systematic accruement of patient-centered data in health services research that is fit for purpose for the context of use. Specifically, three crucial considerations are presented for system transformation: (1) the engagement of diverse patient research partners to conceptualize and prioritize outcomes; (2) the application of modern test theory and methods to develop, test, and implement patient-centered outcome measures that are fit for purpose for health services research and practice; and the (3) allocation of funding accountable to evidence-based services prioritized by patients, communities, and meaningful data. This presentation will build on previous arguments in measurement science, and propose a new approach to bring together metrology, psychometrics, mixed-methods, patient-centred research, and clinical innovation to support meaningful use and interpretation of data to advance the outcomes and experiences of all patients.

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